Saturday, June 7, 2008

March 30, 2008, 8:14 PM

Dear Ones, as of 6:00 this evening when we left TCH, little Jace was doing reasonably well, breathing on his own. When we left him he was gurgling and cooing faintly for now he can make noises since his vocal cords are not being hampered by a ventilator. We are praising God for this amazing gift! He has a fighting spirit. I’ve attached two photos from today (I’m sorry for the darkness in the room, but we can’t use a flash). The tube you see in his mouth is in the upper part of his esophagus that ends in a blind sac. His mucus secretions have no place to go as ours do when entering our stomach, thus he still needs something to suction him out. He is on a bit of oxygen from a tiny cannula entering his nose, and his breathing is more labored now that he is off the machine. However, we know that if the Lord takes him tonight or tomorrow, it will be in God’s good timing. We are so very grateful for this extra time for Lauren and Dan to be with him. If we could all stay in that room, we would never leave! Lauren and Dan were exhausted but smiling with relief over this miracle. Continue to pray for the doctor’s wisdom as we all work to get Jace home if it be the Lord’s Will. Tomorrow, we will know what the next step is to get him better nourished. He has lost a little more weight and needs new IV lines and a gastric tube inserted into his stomach or small intestine for better feeding. His heart is weakening, but he is still here with us. God’s good gift. Pray for comfort for Jace and his dear parents. May they all rest well tonight.

Thank you for your continual prayers for us, dear friends.

Blessings,
Kathy for all of us

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